Living With ALS – New Moods

Posted: September 15, 2015 in ALS, death, Marriage, Uncategorized
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I have written about the fear and anger of loving someone with ALS, but I never imagined the many, many moods that would attack. I went through crying, anger, grief, disbelief and denial. Now I find myself in protective mode, mama bear, wanting to make sure my man has all he needs or wants. I am taking care of legal issues, to make sure all his wishes are granted.

Bring on the legal forms, the Living Will, the Do Not resuscitate forms. No burial, no funeral, make sure he goes to the ALS society research foundation for study. (His wishes) They handle it all at no cost to us. Unpleasant, things I don’t want to think about. But my love for him pushes this to the back of my mind, I want to make sure he does not suffer, or deal with these stupid details. I want his days filled with family, good food, drink, music and the yard he loves.

How long will he be with me? No way to tell. It could be one year, or it could be three, five or ten! No matter the time, he will NEVER have to deal with the law, choices or suffer due to technicalities. I will make sure all his wishes are legally in place. I will fall back on crying and grief once I know he can live what he has left in peace. That could be tomorrow. At my age I am not prepared to lose my mate of thirty-two years, but I am damned if I will let him suffer one legal problem during the time he has left.


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